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About Rett Syndrome


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What is Rett Syndrome?


Rett Syndrome describes the disability of a person who suffers from a very early 

and specific failure in brain development. Most of the people known to have Rett 

disorder are girls but it can also occur in boys. At least 1 in 10,000 girls is affected 

but the number of boys is not yet known.


A person with Rett Syndrome has difficulty in walking and in using her hands, even 

to feed herself, and her joint movements are apt to become restricted. Only a few 

have words and epileptic seizures may occur. In spite of these difficulties people with 

Rett Syndrome are alert, attractive people, smiling, enjoying company and wanting to 

communicate. 


Ongoing Research


Research is continuing into ways to prevent and treat the disorder which 

leads to the Rett Syndrome, and families make important contributions 

to this work through sharing their knowledge and through fund raising.


Alison Kerr, September 2000




RSAS is a Scottish Registered Charity No. SCO16645